Despite showing concerning symptoms at birth, it took four months of testing and appointments for Charlotte to receive a diagnosis of intestinal malrotation.
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Charlie began experiencing concerning GI symptoms at birth but it took seven weeks to receive a diagnosis of intestinal malrotation and volvulus. Despite surgery Charlie continued to struggle with vomiting and failure to thrive, leading his mom to begin searching for new doctors who could help him.
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As a baby Nathan experienced recurrent vomiting episodes, but his parents were assured he simply had frequent stomach viruses. During one episode Nathan’s temperature dropped and he began passing bloody stools. He was rushed to the hospital but passed away before doctors were able to perform his life saving surgery.
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On Lyra’s fifth birthday she had emergency surgery for intestinal malrotation and volvulus. After the Ladd’s procedure her GI symptoms became so severe her parents feared she would spend the rest of her life in pain.
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Gillian began suffering from severe abdominal pain her freshmen year of college. After being diagnosed with intestinal malrotation she decided to undergo a revolutionary new surgical procedure that placed her intestines in the correct anatomical position.
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Isabelle began experiencing intermittent episodes of pain as a newborn, but it took four and half years for her parents to find a pediatrician who would take their concerns seriously.
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Taylor had chronic stomach aches growing up, but was always told it was due to stress or anxiety. When she was 31 years old she began experiencing extreme pain and vomiting, she was quickly diagnosed with intestinal malrotation and volvulus.
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